Reference Links

Useful sources of information on childhood cancer and related charities.  The descriptions are taken from the organization's own web site.

Web Link Children's Brain Tumor Foundation

Children's Brain Tumor Foundation"A non-profit organization, was founded in 1988 by dedicated parents, physicians and friends. Our mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors"

Web Link Pediatric Brain Tumor Foundation

PBTF logo horizontal updated 1"The Pediatric Brain Tumor Foundation® (PBTF) is a 501(c)(3) nonprofit charitable organization that seeks to

  • find the cause of and cure for childhood brain tumors by supporting medical research
  • increase public awareness about the severity and prevalence of childhood brain tumors
  • aid in the early detection and treatment of childhood brain tumors
  • support a national database on all primary brain tumors
  • provide educational and emotional support for children and families affected by this life-threatening disease."
Web Link Pediatric Brain Tumor Consortium

Pediatric Brain Tumor Consortium"PBTC's mission is to contribute rapidly and effectively to the understanding and cure of these tumors through the conduct of multi-center, multidisciplinary, innovative studies with designs and analyses based on uniformly high quality statistical science. While the primary mission of the PBTC is to identify through laboratory and clinical science superior treatment strategies for children with brain cancers, the PBTC investigators recognize their profound responsibility to meet the special needs of the children and families as they face this enormous challenge. Members are committed to working within their institutions and communities to improve support services and follow up care for these patients and their families."

Web Link Central Brain Tumor Registry of the United States

Central Brain Tumor Registry of the United States"The Central Brain Tumor Registry of the United States, CBTRUS, is a not-for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain tumors, benign and malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain tumors."

Web Link American Association for Cancer Research

aacrThe mission of the AACR is to prevent and cure cancer through research, education, communication, and collaboration. Through its programs and services, the AACR fosters research in cancer and related biomedical science; accelerates the dissemination of new research findings among scientists and others dedicated to the conquest of cancer; promotes science education and training; and advances the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world.